International Progeria Registry
The Progeria Research Foundation has established itself as the international resource for Progeria research and education.
The Hutchinson-Gilford Progeria Syndrome is a very rare condition. To better understand the nature and natural course of the syndrome, an International Registry has been established. The Registry provides resources for the study of Progeria. It maintains centralized information records on living Progeria children cases from around the world.
Confidentiality of personal information regarding incidence, genetics, clinical course, and prognosis is provided to professionals and families. The Registry also serves to improve communication of ideas among interested researchers, and to assure rapid distribution of any new information that may benefit patients or their families. Your cooperation in registering and in helping to contribute information on Progeria individuals to the Registry is greatly appreciated.
